M.E./CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome - see here ) already has a lot of stigma and judgement surrounding it, so it's no wonder people often make comments or suggestions that make us want to pull our hair out. And they are probably things you've heard over and over again, and still no one seems to get it.… Continue reading 20 Things Not to Say to People with M.E./CFS
Happy Monday to you all once again and welcome to the final article in the series of "THIS WEEKS FEATURES" which looks at the treatments I have had. If you have a diagnosis of M.E./CFS then you will know that it comes with a lot of stigma but also a lot of poorly educated healthcare… Continue reading THIS WEEKS FEATURE: My Treatments for M.E./CFS
Sometimes, there is a fine balance between managing one health condition and stirring up the rest. I often find that if one condition is flaring, then it'll cause some disruption to another one and I'll flare with it later on. The biggest thing I used to have be manage carefully was the fatigue, but now… Continue reading Me and M.E. – Life is a Juggling Act
On 26th July 2018, I married my best friend, my soul mate and life partner. It really was the best day of my life and I would do it all over again if I had the chance. We had a very intimate church service of just under 50 guests, in a petite little village church… Continue reading WEEKEND WRITE: Preparing For My Wedding Day!
About a week or so ago I reached out to my wonderful followers on Instagram to get their answers to two questions that I think are really important when you are trying raise awareness among both the spoonie and non-spoonie community. What I wanted to know was what had living with a chronic illness taught… Continue reading Life with Chronic Illness: What Has it Taught Us?
You may have started reading this article thinking that I must be mad, or you may be reading this article because you feel the same way. The endless list of side effects, the chance they may not work and that constant word "addiction" that floats around. Yep, I'm talking about pain relief. Pain relief, pain… Continue reading Time to be Honest: Pain Medication Scares Me
Yesterday, I felt like I hit rock bottom. I don't know whether it was the sedation from my procedure earlier that day, but I just felt incredibly overwhelmed by everything that was going on. What is going on? Well, I've had multiple surgeries in a very short space of time, with each recovery taking longer… Continue reading When it Sometimes Gets Too Much
I can't think of a time where I wasn't in pain. There are quite a few times during the day, or when I wake up in the morning, that I find myself trying to distinguish where my pain is and what is causing it. If you are like me and you suffer with multiple chronic… Continue reading Pinpointing Pain – It Can Be Tricky to Manage
Ah, Mondays. That day of the week that brings you right back down to earth after a glorious weekend. The day that feels the longest and the slowest. The day that is unpopular (unless it is a Bank Holiday). As much as I encourage that we should be embracing each and every day (yes, that… Continue reading This is How My Monday Went…
There are some people in this world who do not believe in the diagnosis of M.E./CFS, simply because it is a very tricky disease to diagnosis physically (e.g. through blood tests). However, as more and more research comes into play, the ability to prove a diagnosis of M.E./CFS is starting to happen. If you are… Continue reading THIS WEEKS FEATURE: What is M.E./CFS?